We have now had all the sponsor money in for the Snowdon4Nystagmus 2011 fundraising event. We smashed our target of £500, we never thought we would be able to generate such a large sum of money for charity. A big thanks once again to everyone that supported us
The closing balance of our Just Giving Page is £2,017.04
Taken from our local paper, the Suffolk Free Press.
After reading a Free Press story about little Joshua Bacon, who suffers problems with his eyesight, Sudbury police officers have bought the three-year-old some much-needed equipment.
And this week his mum, Jen, said she wanted to thank the police for their kindness from the bottom of her heart.
Joshua has a condition called congenital nystagmus, which affects one in 2,000 people, causing problems with their sight. He was diagnosed with the condition as a baby.
Now, thanks to the police, Joshua is the proud owner of a tilted desk, some extra large-print story books and a special desktop magnifier for reading, which was donated from the Shona Gill Fund at Sudbury Police Station.
Jen said: “They got in touch after seeing us in theFree Press and kindly bought Joshua some much-needed equipment.
“We would like to say thank you to them for the generous donations as it wouldn’t have been possible without the story.”
For the full story, see this week’s Free Press.
Published on Thu 16th December 2010 11:09 AM
Joshua’s playgroup has recently receiving funding for a ClearView CCTV Magnifier.
Objects placed on the movable reading table can be magnified on the crystal clear display. This is a great tool to help Joshua with reading small font, viewing tiny objects as well as having fun magnifying objects. These photos were taken at playgroup showing Joshua magnifying a leaf and his hand.
The design enables easy magnification of any object at the twist of a button. A great device to help Joshua. A big big thankyou to his Playgroup and Visual Imparement Team for sourcing this. This is a great example to show there is help available out there you.
Target: £500.00
Raised so far: (Updated Jan 2011)
Via Justgiving.com: £1,385.04
£1,435.04£1,717.04£1,817.04
Everyone successfully completed the hike UP and DOWN (The train wasn’t used, although very tempting). A BIG BIG thank you to everyone who took part and helped exceed our target for Nystagmus Network. It was good to see so many people who are not necessarily directly related to us giving their support.
I have taken the time to write a short blog on our experience
Our Story
Our son Joshua was born with Idiopathic congenital Nystagmus. This is a condition that affects his eye sight and therefore means he is registered partially sighted. We are very keen to raise money for research into this condition as there are still many unknowns. We have fantastic friends who all agreed to spend their August bank holiday weekend travelling to Wales to take part in climbing Snowdon to help raise as much for Nystagmus Network. We are very grateful to them and everybody that helps sponsor them.
Day 1 (Pre Snowdon Climb)
We arrived at the camp site to be greeted by the great welsh weather. There was no good pitch to setup camp as everywhere was WET and MARSHY. The ground was so wet a mallet wasn’t required to bang the pegs in, you could simply push them in, only for the wind to catch the tent and pull the peg straight out. We soon realised trainers weren’t going to be any good as we all had wet feet so popped to the local shop to get some wellies and buy some ridged pegs to try and secure the tent as the normal pegs were no good in the ground. The first night was extremely windy and the tent suffered 2 snapped poles during the night.
Day 2 (The climb)
The wind was still blowing with mist type rain everywhere. Assessment of the tent show some pegs had been pulled from the ground so had to check the tent was still well pegged down as we didn’t want to get back from a climb up Snowdon to find the tent was gone.
We made our was to Llanberis and parked up. The staff there informed us the conditions were severer with high wind and extremely cold. Staff warned us to use extra layers, Immediately everyone rushed to the car to get another jumper or any other clothing they could find. It looks so sunny at the base but as we all learnt the weather changes so quickly when climbing mount Snowdon. After a quick coffee and snack we started our climb. I’m glad to say that everyone made it to the top.
The team split into two groups, the faster and slower, I stayed with the slower group.
When talking to the faster group it was clear we experienced different weather conditions, its strange how things can change so fast when on the same mountain. While we both had strong winds we received heavy rain at halfway house, combined with the wind this was very challenging. The faster group had heavy rain and low visibility (2-3m) at the peak. I’m glad that when I reached the summit the visibility was very good as the last time I climbed Snowdon the visibility was very poor. The temperature at the top was very cold, a member of staff was heard quoting minus 2, this combined with the pounding wind brought the conditions even lower but we all made it.. After a few photos (the one attached is taken from the top) we left for our decent back to the cars. The journey down was fairly straight forward although the pressure on the knees was felt by everyone. we set off at 10am and finished at 5:30 and promptly went to the nearest pub for a hot meal and drink (s).
Day 3 (home sweet home)
After a cold achy night sleep and deflated airbed (which everyone seemed to suffer from) everyone woke with aches and pains ready to start a long journey home. With the high winds we ended up with 3 snapped poles. This tent has done me good, I have never had any poles snap on any other camping trip – this highlights just how windy it was.
Our Just giving page is still available using the following link;
A very quick update….I need a little time to upload and photo shop the rest of the photos and blog the Snowdon experience
Target: £500.00
Raised so far: £1,385.04
Everyone successfully completed the hike UP and DOWN
(The train wasn’t used, although very tempting)
A BIG BIG thank you to everyone who took part & all our sponsors for giving so generously
YOU KNOW WHO YOU ARE
Snowdon4Nystagmus Photo gallery 2010 taken during the charity climb.
A huge BIG thanks you for all you support and donations we have now reached and exceeded our target which is absolutely fantastic. There’s still time before we take to the mountain so please continue to support us.
Ash & Jen
Ash my fantastic friends and I are climbing Snowdon on August the 29th to raise as much money as we can for Nystagmus research.
Here is the just giving sponsor page. xx
http://www.justgiving.com/snowdon4nystagmus
James, owner of Nystagmus.co.uk is running the Bath half Marathon for Nystagmus. Please take a look at his Just giving page and support
http://www.justgiving.com/nystagmus
There is also a section on his Forum