Where would we be without Wind The bobbin Up. This is Joshua’s all time favourite nursery rhyme and with a simple and clear video its easy for Joshua to view and follow.
I was recently asked to come and talk to some nurses and Doctors about what it was like from a parents perspective to have a child diagnosed with Nystagmus. This was very scary as they originally told me it would be for about 10 people but when i got there it turned out to be 75!! I have never spoken in front of a group of people before and was scared at the thought of 10. I had to think fast so managed to get my blog page up on the huge screen behind me to fill some time. It also came in handy as we have a video clip of Joshua’s eyes when he was a baby.
I thought this was so good of the hospital as they primarily wanted me to talk about all things they could improve on to help future parents. Joshua see’s Doctor Vivian and he really is a brilliant Consultant so it was hard to think of things to moan about. The main one was the lack of literature which they said willl be promptly changed. Brilliant hospital, we are very lucky.
Jen
I was looking back through old home movies and found this night vision footage of Joshua few months old. You can see his eye movement, although due to the dark and being very sleepy his Nystagmus is much more noticeable. I hope that this will show others what Nystagmus can look like, if you havent seen it before.